Waste of time

Well, I had to take a full day off work, drive an hour and a half each way in heavy snowfall, wait for another hour and a half in the waiting room, just to spend 15 minutes (or less) with the surgeon. He gave me the impression that he didn't really remember me and he took all of 4 minutes to look over my chart. It was very frustrating. At least he's going to take my case to the tumor board on Monday. 

Also, my other doctor delayed my appointment from today to Friday so I'm not sure I'll have the meds on time to start next week. 

All in all, yesterday was very frustrating and seemed not worth the effort. 

Hello again

I had another MRI scan that came up the same as last time, stable! I don't know anything more than that. It was just a nurse that left a voice mail for me. I had copies of the reports sent to all my doctors. I have 3 specialist visits next week and Charles is going to two of them with me.

I've been off the steroid for about 10 days. I used to eat all day long and not sleep. Now I sleep all the time and can't eat much. I'm so ready for my body to level itself out.

In family news, we're 100% potty training Ellie this weekend. Charles has Monday off so a 3 day weekend was a good chance to do it. She's ready, but she refuses to go and screams for a diaper. So we're going the old fashioned way; naked. I know it could/will be messy, but it's time for her.

Grace and Liam did their power point presentations today. Yes, you read that right. Our kindergartners made a power point presentation, 4 slides long, stood up in front of the class, and presented their favorite meal. It was EXTREMELY adorable and I'm SO glad I could be there (I wish I could say the same for my phone/camera!).

Bye bye evil steroid

I took my last steroid pill yesterday morning so I am having the expected itching, headache, and insomnia. Hopefully it'll be done soon so I can feel better!

I skipped my last cycle of chemo. I didn't want to literally start the new year with it (supposed to start on New Year's Eve). The next is tentatively scheduled for January 29th. I have another MRI and a few specialist visits set up before then. I have had a change in my ability to taste foods like I used to, which is concerning. 

Other than some insomnia induced fatigue, I feel pretty strong right now. I've kept up with my walking and I have been disciplined with my study nights, even sacrificing watching Downton Abbey for 4 nights after air date!